Hello!
So what is GAND?
GAND stands for GATAD2B - associated neurodevelopmental disorder, also referred to as GAND Syndrome, it is a rare genetic condition with approx. 355 people diagnosed in the world.
Our Mission
Our mission is to raise awareness, support individuals and families, collaborate on medical research projects to then hopefully find the best possible treatments available for the patients.
At present there is NO cure or treatment opportunities for GAND, we want to change that!
Welcome to the GAND Family!
GATAD2B - ASSOCIATED NEURODEVELOPMENTAL DISORDER
GAND IS A RARE GENETIC NEUROLOGICAL CONDITION
We’re here to help recommend therapy options, fund research & support families.
To hopefully one day find treatments for GAND.
Hello! We are the Carney’s
We are Rebecca & Brian Carney, we have two daughters Orla and Shea. Our incredible little girl Shea was diagnosed with GATAD2B-associated neurodevelopmental disorder in 2022. We are the family behind the charity and we’ve been on a HUGE journey. Your support means the world to us and our GAND community .
News & Community
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Research Paper
On the 18th Jan 24, the latest research paper on GATAD2B was published.
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Rare Disease Day
29th Feb we have RARE DISEASE DAY coming up. GAND AID is raising awareness.
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Yorkshire 3 Peaks
Summer 24 we can confirm the 3 Yorkshire Peaks walk will be going ahead. Contact gandaiduk@gmail.com for more information.